Does this look like a girl who just had surgery? We don't think so either! Faith has recovered miraculously well- it truly is amazing. She is OFF of CPAP and on oxygen (which is the tube going to her trach in the picture). Now don't get us wrong- she still has her moments but NOTHING like this past weekend. Now we are adjusting to "trach life." As we anticipated it is hard not being able to hear her. It's like someone pushed the mute button on her- it looks like she cries but nothing comes out- not even a peep. Meanwhile her trach is full of noise! Since the tube bypasses her airway and goes straight to her lungs we can hear her body working- we can also tell when she needs a good suctioning (which we are pros at now! What a difference a day makes!) We are still nervous about the whole trach care thing- but we will get it! We feel likes things might be on the up and up!Thanks for all of your prayers- we have such a amazing friends and family- there's no way we could have gone through all of this without you!
Brian and Jen :)
5 comments:
It is truly amazing how well she is doing! Praise the Lord! Everyday will get easier and the trach will just become a part of her and be no big deal. Believe me! Wouldn't it be something if she came home without oxygen! That would beat it all wouldn't it! :)
So good to see her beautiful face.
We will keep praying, it is awesome how God creates these kiddos to be so strong. Truly amazing!
Take Care -
JoEllen
Now thats what I love waking up to! She is so beautiful! JoEllen ( above me in the blog) is correct, the trach is part of her for the time being but it will get easier as you learn more...and you will!
I told you before..GOD has a huge purpose for Faith's life and yours!
FAITH: I am so proud of you. Keep up the good fight and I cant wait to meet you.
All my love and prayers,
Aunt Susan
XOXOXOXOXOXOXOOXOXOXOXOXO
* You deserve MANY of these hugz and kisses)
The message below is from my dear friend Charlie Daniels:
HI SUSAN
I WILL CONTINUE TO PRAY FOR FAITH.
GOD BLESS
CD
Jen and Brian,
She is strong and it is so good to see her persevering which is all she knows how to do! She doesn't know what it means to quit or give up on life.. she is not a quitter, her purpose is too divine!
Her color looks like it has never looked before.. She looks like she is getting oxygen to in her body! She can breathe!~ HALLELUIAH!! We will continue to believe and pray! We love you with all of our hearts!
Your Friends,
Katie and John
I am so happy and grateful to the doctors and especially to God for the good news on Baby Faith. She is a pretty little girl! May she continue to get better with each passing day! Thank you for the updates.
Sincerely,
Sherry Miller
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