What's the best thing about having a baby with a trach? Well, after 5 months were are finally able to see our baby's face! We just can't get enough of her- kissing her cheeks without tubes and tape is such a blessing!Alright, well onto what you all want to know:
Faith is doing MUCH, MUCH, MUCH better! She is off of the vent! (woooooowhoooo) and on CPAP (it is different from the nasal cpap she was on before- this just hooks to her trach.) We think what happend is that she was overloaded on meds- which made it difficult for her to breathe. Friday night Brian and I kept saying, "She's in pain! Give her more meds!" Well that was a catch 22 because it impaired her breathing. Faith still has little moments where she desats, but once she is suctioned she comes up quickly. There is even talk about taking her off of CPAP tonight! What a turn around!
Faith is also eating from her g-tube. During her g-tube and nissen surgery they found a hernia which she will need to have surgery on in a few months (of course, the poor girl just can't get a break can she?) We also learned that because of Faith's nissen (a tie to the stomach) she will never be able to throw up (so when she is a teenager it'll be a good excuse for her not to drink!) We never thought we'd get to the day when even throwing up is something not to take for granted (not really, huh? That might be a gift!)
Alright well enough rambling- thank you again for all of your prayers- we really felt them today- and they worked! Well we've got to go kiss our little angel's non-tubed cheeks once more!
Thanks again,
Brian and Jen
9 comments:
Dear God,
Help Baby Faith get better and her Mom and Dad and all her family. Thank you that she is doing so much better. That's Amazing! We love you Baby Faith! Come home soon! Jesus loves you!
Love-
Walker and Hannah Nikkel
Jen and Brian,
What a day. God is such a amazing God.We have been so moved to pray for your baby Faith. God has a plan for her life. He will be glorified in her Life.Prov 3:5,6 was the word for this day. Trust in the Lord with all your heart, lean not on your own understaning. In all you ways acknowledge Him and he will make your path straight.We pray that God strenghtens you also as you walk through this trial. Keep up the good fight. God rewards those who earnstly seek Him. And I know that you two do on a daily basis. Gods Blessing and Favor to you three.
Love The Cuba's
Dear Jen and Brian,
After praying, praying, praying, PRAISE JESUS for Faith's recovery today! Wow, Faith looks so BEAUTIFUL in the pictures, you would never know she had such a scary Saturday and surgery on Friday! Have fun kissing and kissing her perfect little cheeks! Jesus has His arms wrapped around all of you and I will continue to pray that everything goes well as you become experts on her trach and g-tube at home! Faith, get ready to meet your siblings - the labs!
I'm here if you need anything at all.
Love,
Mary Trujillo
Look at that beautiful face !! She is just sweet as can be ! Glad to hear things are on the right path now. Stay strong for your little girl !
WOW! God NEVER ceases to amaze us does He! God is great isnt He!
Praise Jesus in all He is doing in Baby Faiths life which pours into others.
I pray for God to continue His wonderful healing for Baby Faith! I pray for continual strength for Brian and Jen!
I also pray that if anyone who reads all about Baby Faith doesnt believe in miracles and in God..this is a testimony as to WHO God is and that NOTHING is bigger than God!
Baby FAith is perfect in His eyes and in mine.
Faith continue to fight and show them that GOD is truely with you..has been, is and always will be! Way to go GIRL!!! Keep breathing...we ALL love you and your family!
God Bless! Have a great day today!
Aunt Susan and Uncle Mike
XOXOXO
Now that is the news I wanted to read. I am so glad she is doing better. Oh yes look at the adorable face.
Bless her heart! I not only have been thinking of her, but Brian and Jen. I am sure they are beginning to get tapped out with all of the highs and lows. An emotional rollercoaster can be very difficult. I am praying for Gods presence and their patience. Please take care.
Brenda
(This is MIkes commanders wife)
I just couldn't help myself but I had to see my little girl today! Her face is so darn cute! I see it in her eyes..she is doing better!
Let her know her Aunt Susan LOVES her so much!
I love y'all
Aunt Susan
XO XO XOXO
Great news!!!!! I am sure the body fights new things at first, and it is probably fairly normal to have an adjustment phase to the trach. I think and hope the worst is over. She and the both of you have a lot of living to do...So, let's get on with it already!
Hang in there. We will continue to think of all of you.
Grant and Kaia Nesbitt
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