Boy, having a baby with a trach and a g-tube is A LOT of work! First of all there is constant worry- does she have too many secretions that ismaking it difficult for her to breathe? If there a plug blocking her airway? Does she have enough humidity? Too much? Because Faith cannot make noise (except from the gurgling sound that comes from her trach) you always have to have your eye on her (or one eye on her the other on the monitors!) The enemy is a plug. We experienced the VERY bad side of a plug last weekend when it would not pass and she was very close to not coming back. Today she had some little plugs- which scared us a little but it was nothing that saline, suctioning, and increased humidity couldn't fix. The g-tube is another thing. I don't think we realized the complexity of the tube. Because of the tube Faith can't burp- so she burbs out of her button. This means we need to "vent" her stomach using a syringe. needless to say we were dumped with Faith's undigested stomach contents many times today. There is a lot to handle! Fortunately when Faith come home we will have a nurse here most of the week- I never really understood why kids with trachs get home nursing until today- you just can't do it alone! Other than that Faith is doing alright- now it's us you have to pray for! ;) We'll get there- it hasn't even been a week yet so adjusting to this new life is going to take some time.
Thanks for checking in today!
Brian and Jen