Thursday, February 26, 2009
I haven't been updating the blog recently because...
A.) We've been suuuuuper busy over the past couple of weeks....
but mostly B.) In following with the rule I impart on my students, "if you don't have anything nice to say, then don't say it at all" I'd be a hypocrite if I did.
After finally recovering from the respiratory slaughter, Faith finished her antibiotic on Tuesday then botta bing, botta boom it hit us like a ton of bricks by Wednesday night. The G.I. bug from "you know where" is back (remember him from 10/07 and 10/08...y'up we sure do) and Faith has been miserable ever since.
You know that terrible feeling you get in your gut when you need to throw up? Remember how good it feels (in a sick sort of way) after you've done the deed? Well our little girl cannot throw up because her stomach is tied off. The result is hours upon hours of retching (now I know how you feel Tina!) and it all coming out the other end. It may sound nice, but trust us it's not pretty. Watching her toss and turn, moan and groan and not be able to do a darn thing about it, is torture for everyone involved.
Faith is also running a high temp. which surprisingly rare for her. I can count on one hand the number of times she has had a temp, and that's through many bouts of sepsis!
So that's where we are tonight. I'm begging...pleading....givng my first born (ok not really..) that we will not get this, too. The other two times Faith had this it came for us days later. The only thing more difficult then taking care of a trach/vented baby who cannot throw up is having to do it from the lavatory..yeah you got it..not a pretty picture.
Uh-oh..... there I go again. I didn't hold true to my word...well I had to post something...or you'd really think we'd actually fallen in the commode.
Ok enough potty talk for one post.
Thanks for hanging in there w/us,
Jen & CO.
PS: Yes, this is messy, icky and miserable, but I'll take a G.I. bug over a respiratory issue any day. (I may be retracting that statement at 2am tonight!)
Monday, February 16, 2009
If I haven't already won the award for "Most Dramatic Mom of the Year", this account certainly puts me in the running. ;)
(Coping mechanisms, people....how else do you expect us to get by?)
Hope your Valentine's day was equally as rewarding,
Jen & CO.
Wednesday, February 11, 2009
Faith had a very nice birthday. We kept things very low key this year (I know, those of you who know me are wondering how that is possible). Faith spent the day of her birthday being evaluated for an augmentative communication device (more on that later) which was pretty cool. Over the weekend we had a little family party, once again keeping it simple. :)
As usual the opening presents thing was ......er.......interesting...here are some pics from her soecial day:
FINALLY, they listen to me.... What a girl REALLY wants....
Now, we are not ones to get all fancy and put Faith in a dress (when your child doesn't walk, it's really impractical) but we couldn't resist when uncle Josh gave her this beautiful brown dress last Christmas. Not only was it as cute as can be but it served multiple purposes as it immobilized her enough to actually sit still.
This is one of those "you-had-to-have-been-there-to-appreciate-it" pictures. Since we do not take Faith out (respiratory season isolation) she doesn't get much interaction with kids, yet alone get up close an personal with one! So when my brother's girlfriend's son came over, Faith was completely enamoured with him. It was too funny. It was like she said, "enough with these boring adults, I wanna play with someone my own age!" Poor Gabe was tortured as he tried to play video games.
Wednesday, February 4, 2009
Too soon you sprung from her internal nest,
Too soon the gift of you unwrapped…
And yet, sweet child, you were on time.
On time to tell of Cradling Palm and Giver of your name,
On time to force to trembling knees witness of unseasoned clay,
On time to wish our pulse and breath into your fragile frame…
On time, sweet child, on time.
And what of tomorrows – yours and ours?
Of dreams long held and dreams unspun?
What of the Promise with which you came?
The Promise lives, the Promise waits,
To enfold you in His strong embrace.
From distant worlds you arrived on time
To a place prepared you shall return, in time.
And of the interval inbetween?
And through each eternal spring?
You’ll share our hearts, our love, our faith,
O precious child, who came on time.
Happy Birthday precious Faith! We love you!
Mommy & Daddy too
Tuesday, February 3, 2009
Faith needed to be suctioned, her crib needed to be changed (when you can't throw up it all goes out the other end) and I was in immense pain. As I lay there realizing the crappiness of the situation, I came to the realization that this was what it meant to be an adult. Forget leg pain, forget the stomach flu. It's my resposibility to take care of my sick baby, and no one is there to take care of me, not even me!
A similar (although not as nearly severe) situation occurred last night. We avoided the hospital this weekend and it looked like things were on the up and up. Until last night all hell broke lose and it was another miserable night of non-stop suctioning and non-sleeping (although the latter is not unique in our house). While nothing compared to the stomach flu, Brian and I caught whatever Faith had and have been battling our own illnesses.
All I wanted to do was take some NyQuil and go to bed. But I couldn't. I couldn't even lay down because every time my head hit the pillow I would need to suction Faith again. This is the difference between a typical child having a cold and our child; suctioning. There is nothing I despise more than the sound of the suctioning machine slicing through my migraine at 3am...that and the non-stop alarming of the vent every time I "make a pass."
I couldn't help but loathe in a little self-pity as I realized that my child would be turning two years old the following day and she has yet to ever sleep through a night. Forget sleeping through the night, at this point we'd be happy if she slept through an hour.
The difference between last October and this year is that I handeled the situation with a little bit more maturity this time around.
At 4am when Brian came in and realized that not a wink of sleep had been had, he pleaded with me to call in sick. Knowing full well my alarm clock was going to be going off in the next hour, I reluctantly said no. And then he said something that struck a chord with me. He remarked that If any of the teachers at our school experienced one night like we had just had, you could bet your bottom dollar they'd call in, the only difference between us and them is that we do this 3-4 times a week (OK the bottom dollar part was me..Brian's not that cheesy).
He was right. And I was tired. And the difference between last October and now was that I knew our nurse would be here in the morning. A nurse I trust. A nurse I could shut my door and sleep the day a way without ever worrying about my daughter.
Around 6 am I caved in and called the sub line, e-mailed my colleagues, took a swig of NyQuil and I finally grew up.