What's the best thing about having a baby with a trach? Well, after 5 months were are finally able to see our baby's face! We just can't get enough of her- kissing her cheeks without tubes and tape is such a blessing!Alright, well onto what you all want to know:
Faith is doing MUCH, MUCH, MUCH better! She is off of the vent! (woooooowhoooo) and on CPAP (it is different from the nasal cpap she was on before- this just hooks to her trach.) We think what happend is that she was overloaded on meds- which made it difficult for her to breathe. Friday night Brian and I kept saying, "She's in pain! Give her more meds!" Well that was a catch 22 because it impaired her breathing. Faith still has little moments where she desats, but once she is suctioned she comes up quickly. There is even talk about taking her off of CPAP tonight! What a turn around!
Faith is also eating from her g-tube. During her g-tube and nissen surgery they found a hernia which she will need to have surgery on in a few months (of course, the poor girl just can't get a break can she?) We also learned that because of Faith's nissen (a tie to the stomach) she will never be able to throw up (so when she is a teenager it'll be a good excuse for her not to drink!) We never thought we'd get to the day when even throwing up is something not to take for granted (not really, huh? That might be a gift!)
Alright well enough rambling- thank you again for all of your prayers- we really felt them today- and they worked! Well we've got to go kiss our little angel's non-tubed cheeks once more!
Brian and Jen