Wow- has it really been two weeks? We are sooo sorry! Time has just slipped away form us. As you know we spend the night at the hospital every night (well we switch off- one night Brian stays the next night I stay) and when one of us is home there is a lot of catching up to do. Last weekend we celebrated our 3rd wedding anniversary. We didn't do anything fancy- we just sat on the couch and watched some baseball- but to us, this was heaven. It's crazy how much you don't appreciate things until you don't have them. I don't know when we will be a "family" again- but the sacrifice is worth it. Faith continues to show us how she needs to be in the hospital. Last weekend she had a little episode where she choked on her own saliva and had to be resuscitated. She has also shown some suspicious signs of seizure activity again. They did an EEG which didn't really show anything (it only really shows something if you have a seizure when the probes are on your head) but it did show that Faith's brainwaves are a little "slow" for her age.Which basically means what we already know- she is developmentally delayed. The neurologist said this is to be expected considering she has spent her entire life (minus the fours days at home) in the hospital. She has also been working to breathe a lot more than she has this past month. She is showing us she needs to be on steroids long term, which isn't ideal (there are side effects) but necessary. Even with all of this Faith continues to be a delight. She is a lot of fun to be around. We have a blast playing with her and seeing the different sides of her personality.
Thanks for keeping in touch. It means so much to us that you all check the blog regularly (even when we don't post!) and keep our little angel in your prayers!
Take care! (And GO Rockies!)
Brian and Jen