Saturday, October 20, 2007

Wow- has it really been two weeks? We are sooo sorry! Time has just slipped away form us. As you know we spend the night at the hospital every night (well we switch off- one night Brian stays the next night I stay) and when one of us is home there is a lot of catching up to do. Last weekend we celebrated our 3rd wedding anniversary. We didn't do anything fancy- we just sat on the couch and watched some baseball- but to us, this was heaven. It's crazy how much you don't appreciate things until you don't have them. I don't know when we will be a "family" again- but the sacrifice is worth it. Faith continues to show us how she needs to be in the hospital. Last weekend she had a little episode where she choked on her own saliva and had to be resuscitated. She has also shown some suspicious signs of seizure activity again. They did an EEG which didn't really show anything (it only really shows something if you have a seizure when the probes are on your head) but it did show that Faith's brainwaves are a little "slow" for her age.Which basically means what we already know- she is developmentally delayed. The neurologist said this is to be expected considering she has spent her entire life (minus the fours days at home) in the hospital. She has also been working to breathe a lot more than she has this past month. She is showing us she needs to be on steroids long term, which isn't ideal (there are side effects) but necessary. Even with all of this Faith continues to be a delight. She is a lot of fun to be around. We have a blast playing with her and seeing the different sides of her personality.
Thanks for keeping in touch. It means so much to us that you all check the blog regularly (even when we don't post!) and keep our little angel in your prayers!
Take care! (And GO Rockies!)
Brian and Jen

9 comments:

Anonymous said...

OKOK I forgive you for not posting Ha-HA! I was pretty sure things were going better!

3 YEARS! WOw We remember that day like it was yesterday. I was just looking at the photos when I was in CAlifornia. How beautiful you were/are Jen and how handsome our men were! Brian look so handsome in his tux and of course......
YA Gotta love a man in uniform...ok ok I am biased!
We had such a wonderful time on that trip to your wedding and we celebrated our anniversay early..we had fun being with the family new and old.

Now we have a gorgeous little angel named Faith! God is great , isnt He!

Give my girl a sweet kiss from her Aunt and Uncle and tell her we are so proud of her! She is a little fighter!

I am sorry to hear about the choking ..I am sure that was scarey!
She always seems to get through all everything with flying colors!

God Bless you all and we love and MISS YOU!

Aunt Susan, Uncle Mike, Steve and Chelle
xo xo xoxoxo

Anonymous said...

What! No pictures! Well at least there is an update. You know I am giving you a hard time. You both amaze me how well you have done with this long term hospital stay. Kudos to you for taking some time to yourselves. Happy Anniversary to you by the way! Probably didn't plan it this way. Just shows you God has great things in store. Way to keep them guessing Faith and thanks for praying for Hannah.

Love you guys-
The Nikkels

Anonymous said...

I think about the three of you each day, and love that you are keeping up with the blog despite your crazy schedules. It has been an honor and a priveledge to watch Faith grow :)
Love
Lisa

Anonymous said...

happy birthday jen?

Anonymous said...

We're still praying for you from Missouri!

-Bonnie and Bubba

Anonymous said...

HAPPY BIRTHDAY JEN! HAPPY BIRTHDAY TO YOU!!!

AUNT SUSAN , UNCLE MIKE AND STEVE AND MICHELLE

YOU AND YOUR UNCLE SHOULD HAVE CELEBRATED TOGETHER!

WE LOVE YOU!
XO XOXOXO

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