Despite not writing about it on the blog, Faith has been sick a lot this summer. Nothing major. But when you have a child with chronic lung disease who is trach/vented the littlest cold can throw everyone off the edge. As if nights with Faith weren't hard enough, when she is sick there is not a wink of sleep in our house. Faith has needed so much suctioning the past few nights.
Although Brian and I take turns taking care of Faith during the night, when push comes to shove and 3 am hits it's usually a two person job. It's very exhausting to be up night after night, work with kids all day, come home and do it all over again.
On these particular nights my heart goes out to Faith. She just looks so miserable. She wants to sleep... she just can't. During the day she still has copious amounts of secretions but is her smiley self. So obviously she's not that sick, but sick enough to make us all a little out of sorts this week.
As with any parent, however exhausted we are, when we see our baby girl's smiling face it makes it all worthwhile. :) Here's a few pics that will (hopefully) make you smile:
Faith out and about for her Uncle Josh's (Jen's brother) birthday party. It was also her Uncle Kevin's (Brian's brother in Buffalo) birthday last week so happy birthday to all of the uncles!
(And Uncle John in Atlanta if you are reading this happy belated b-day to you too!)
Faith on another adventure at Bass Pro Shop.
had a nice surprise last week when Faith's friend Noel was in the area and stopped by. The hit toy of the play date? Noel's ventilator. Y'up. The two girls got up close and personal with the machine that keeps both of them alive. I tell ya..never a dull moment...
We hope the rest of your week goes more smoothly than ours!
Brian and Jen :)