Monday, October 13, 2008

Joy, Unexpected

"FAITH is the substance of things HOPED for, the evidence of things unseen.”
–Hebrews 11:1

Dear Faith,

A few months ago a friend of ours asked me if you will ever be able to read. I am a reading teacher and the thought had never crossed my mind. If I were asked the same question a year ago it probably would have thrown me into a state anxiety as I would stress and obsess over what might lay ahead. A year later my reply to this was a simple, “I don’t know.” And I haven’t thought about it since.

I am very new to this journey and am constantly evolving not only as a parent but as a person as well. In the past year and a half I have learned (through the help of others) to take each day as it comes. Everyday we are happy with what we have (you are alive) and anything on top of that is just icing on the cake.

We never expected you to crawl. It’s not that we didn’t think you were capable of it, it’s just a way to cope when the future is so unclear. No, this is not a lack of Faith, I believe it is putting FULL Faith in Him that wherever this journey takes us, everything will be OK.

I woke up Friday morning like a child on Christmas. I couldn't’t wait to play with you and see you crawl! Although your “crawling” looks more like a frog trying to hop with paralyzed legs, it is such an extraordinary step. I can tell it takes so much out of you. Every reach looks exhausting, but you are getting stronger with each movement.

We are so proud of you Faith. Like your Aunt Libby said…there is much more joy to come!

Love you,
Mommy & Daddy too.

PS: You need to get better again missy! Over the weekend you got really sick (this time worse than the last time). We had a scary night where your sats dropped and you were pretty dusky. For a while you were on twice the amount of oxygen you normally are. Once again you are on an antibiotic, which hopefully will clear it up- your mommy and daddy are very tired and need to sleep (and so do you).


Thank you to all who have left comments and sent e-mails congratulating Faith on her big accomplishment. I said this at Faith’s first birthday party and I will say it again. The saying, “It takes a village to raise a child” has never rung truer. In a way each one of you has had a hand in raising Faith. The fact the people actually care about our daughter means so much. So thank you!!!

Holly- thanks for you interest in helping special families! I would love to talk to you more about what we have done in CO. If you get time shoot me an e-mail @ (I tried looking for yours but couldn't find it). Thanks!


Anonymous said...

Yeah! I am so excited that Faith is crawling. We love hearing about how she is doing and then all her primary nurses here at Children's get all excited and happy!! I hope Faith starts feeling better, we would love to see you guys, but not inpatient!
God bless, Beth

Marissa said...

Get better Faith!!

Faithful Froggers said...

Oh, way to go, Faith!

You have such a beautiful daughter! How blessed you are to have her. She just SHINES!

I hope she is feeling better!

Anonymous said...


It was an honor to be in your wedding.


PS - and Happy Birthday Jen, in a little while.

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