Faith is doing wonderful! She has her moments of apnea (where she stops breathing) but for the most part she is doing great. Our biggest challenge right now is lowering the amount of oxygen she is on so she can ween down a level on her CPAP. She is requiring about 40% oxygen right now. To ween down to another level she needs to be at about 30%. She is very "touchy" meaning when someone goes into change her diaper she requires a lot more oxygen. The occupational therapist has been working with her everyday on this- she's taught us how to do infant massage on Faith so she doesn't think that every kind of touch is bad (poor thing she's been pricked and poked so many times she associates touch with pain.) Right now Faith does not tolerate the massage very well (she goes into sensory overload) but over time she'll adjust!Other than that no new news to report! Please pray for the Faith's oxygen levels to decrease- the quicker she weens the more likely she'll go home around her due date.
Thanks so much!
Brian and Jen :)
2 comments:
I am so happy that Faith is doing better...all it takes is a little FAITH!! We will pray that she will not need as much oxygen and that slowly but surely and in HIS time she will be completely off those machines and be home in her beautiful room!! Hang in there..we are SO SO VERY proud of you two!! We love you !
Aunt Susan
xo xo xoxo
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