As we see more and more babies go home on their due dates in the NICU, we are becoming restless as we know that we still have a long time before Faith will be able to come home. Back in Febraury we were just counting down the days until May. Now that May is approaching, it seems like there is not an end in sight. Someone told me this week that we always want to be on chapter 7, when God has us on chapter 2. (Thanks Marcella!) When I told this to Brian he said, "chapter 2 has been a really long chapter!!!!" :) Nevertheless our little girl is surviving.
She keeps pulling out her vent tube (we figured out she's not using her hands to do it, but she trashes her head against the mattress which pulls it out). Every time the tube goes in and out it creates more scar tissue. Brian has been spending the night (not sleeping!) next to Faith to make sure the tube stays in. You can tell she just hates the tube- it is very uncomfortable!
The eye Doctor that did Faith's last eye surgery examined her a few days ago. He is not confident that she needs surgery right now- he wants to wait another week to see if the blood vessels keep growing. This means more time on the ventilator! Ugh!
So right now we are just waiting- it is a little frustrating because we are "on hold" -meaning no progress is being made (nor can be made when she is on the vent).
Please pray that the tubes will stay in!
Brian and Jen