Tuesday, April 10, 2007

Riding the NICU Rollercoaster

They have always told us the NICU is like a roller coaster. Today we went for another ride. We were very excited this morning when we learned that Faith is off of CPAP and on Nasal Cannula. This was a huge answer to prayer. Faith is working extra hard now- you can hear her struggle to breathe. The day was very positive until Faith received her eye exam. We received the worst possible news- Faith was level 3 ROP (Retinopathy of Prematurity) with Plus Disease. ROP is an eye disease of the eye that results when there is abnormal growth of blood vessels. If left untreated this stage of ROP can quickly lead to blindness (this is how Stevie Wonder became blind). Fortunately the doctors caught Faith's ROP and it will be treated with laser eye surgery. There are draw backs to the surgery including loss of peripheral vision. The surgery may require general anaesthesia, which would mean that Faith would have to be re-intubated on the ventilator and would have to be weened off again. They are going to try to sedate Faith without the general anaesthesia to prevent this. The surgery is scheduled for Friday morning.
In Faith's 9 weeks of life she has beaten he odds and overcome tremendous challenges. We believe that this is just another testimony Faith will have!!
Thank you for keeping Faith in your prayers this week!
Brian and Jen


Anonymous said...

Wow how much more can this little angel take..my goodness. You know that not many people can go through what y'all have endured BUT God gives . gave and will continue to give you strength to persevere. If I could take some of the pain and ups and downs from you..I would in a heartbeat! Remember this isnt the WORST news, its just not great news..this is a set back that you guys and Faith will over come! Thank God the doctor caught it and thank God that God gave the Doctors the knowledge to try to fix this! THANK YOU JESUS!I am here to give you the positives and help you get through some of this ..I hope it helps, even if just a bit! KNOW we love you and I never go to bed or wake up without praying for y'all or writing to you guys! I hope this brings a little peace to you.
God Bless you and hang in there on the "rollercoaster"..We love and miss you AND FAITH.........YOU SHOW EM' GIRL!!!! You show them that you are a fighter and you will get through this and see better than you ever imagined you could!!!
We love you
Auntie Susan

Marni said...

Love bears all things, believes all things, hopes all things, endures all things. Love never fails - 1 Corinthains 13:7-8

I will keep sending lots of love your way...

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