Yesterday when we were going through the "what ifs" with Faith's team we agreed the best scenario in today's bronch would be that she wouldn't require the surgery and she would come off the vent right away. We all brushed this off and said, "in a perfect world." Well- IT HAPPENED!!!! Faith did not need the surgery and she came off of the ventilator right away!!!!!!!!! Can you believe it? We are still not out of the woods yet airway wise- basically the doctor saw swelling and scaring at the vocal chords- he described it as a "difficult problem" but not a problem that would be solved by a split. A Trach would be more appropriate, however that is the absolute last resort. He suggested to give Faith time (although he did say this is a problem that will last many months). Receiving treatments (such as inhaled steroids, nebulizers, etc) will help the swelling. But we know what will ultimately help this all: PRAYER! So we are staying positive that she will not need a trach and her airway will heal completely.
Now we tackle another issue: feeding. Faith is a full term 42 weeker now- who is supposed to be nippling. As you know she stopped nippling about a week ago. If she continues not to eat, she may require a gastronomy tube (a feeding tube inserted into her stomach). This is also a last resort- Once Faith gets off of the high flow cannula (which will be a while) and is on an amount of oxygen that is appropriate to come home on, then a g-tube will be discussed. But we are praying that we won't get to this point! So that's where we stand. Right now Faith needs to get of off CPAP (she was put on CPAP right after the procedure today).
Well we are so thankful for today's miracle- really the fact that she came off of that vent so quickly is amazing considering her history!
Let's keep the faith!
Brian and Jen :)