Well.....Faith is back on the CPAP. But this time it was by our choice. Yesterday we noticed that Faith was struggling to breathe- you could her how stridorous she was (swollen airway). We have noticed this is the pattern for Faith- the first day she is on cannula (or extubated) she does great- the second day she struggles. When she starts to drop, she drops very fast, and often resuscitation is needed. Rather than waiting for her to fail, she went back on CPAP for extra support. They are going to try to do 4 hours on CPAP, 4 hours off. So this is a tiny setback, but anything is better than that ventilator!
Please pray with us that her airways will heal!
Brian and Jen
PS: Last night was a really fun night- I (Jen) got to give her a FULL bath (without monitor leads and everything). It was so special to wrap her in a towel, dry her off, put lotion on her and tuck her in to bed- it felt like she was our baby!