Faith had a pretty good week. Just last night she hit the 6 pound mark! Woowhoo! She has been taking about half of her feeds by bottle- the other half through her tube. This week the doctors cut some of her medications like her diuretic and potassium. This is always exciting news.
This week we also had a care conference with Faith's care team to discuss the plan for the next month or so. So far the plan is to ween Faith very slowly from her high flow cannula. This week she went down to 3/4 a liter- next week we will try 1/2. This is where we got into trouble a few weeks ago- Faith was weened to 1/2 a liter and started having lots of problems (which prompted the bronchs, etc.) If she has a good weekend we will ween on Monday. After she is successful on the 1/2 a liter for a while (at least a week or so) then we will try the low flow. The low flow then needs to weened to a level that is safe to come home on. Our goal is the beginning of July- in fact we joked how it would be cool if she came home on July 4th because it would be Faith's Independence day!
Alright, so that's our plan! Now if there's anything we have learned about Faith in the last four months is she has a way of changing plans, but it helps to have some goals in mind! In the meantime Faith still needs to eat consistently.
We are having FAITH that Faith will be coming home in time to hear those fireworks! (or maybe the day after because that might be really frightening for her!)
Well thanks for stopping by!
Brian and Jen