Friday, June 8, 2007

Day 123

Faith looooves her pacifier- it is the way she self soothes and copes with stress- she always falls asleep with it in her mouth- while sleeping they often pop out and can be found somewhere smushed to her face (or on the floor!)

Faith had a pretty good week. Just last night she hit the 6 pound mark! Woowhoo! She has been taking about half of her feeds by bottle- the other half through her tube. This week the doctors cut some of her medications like her diuretic and potassium. This is always exciting news.
This week we also had a care conference with Faith's care team to discuss the plan for the next month or so. So far the plan is to ween Faith very slowly from her high flow cannula. This week she went down to 3/4 a liter- next week we will try 1/2. This is where we got into trouble a few weeks ago- Faith was weened to 1/2 a liter and started having lots of problems (which prompted the bronchs, etc.) If she has a good weekend we will ween on Monday. After she is successful on the 1/2 a liter for a while (at least a week or so) then we will try the low flow. The low flow then needs to weened to a level that is safe to come home on. Our goal is the beginning of July- in fact we joked how it would be cool if she came home on July 4th because it would be Faith's Independence day!
Alright, so that's our plan! Now if there's anything we have learned about Faith in the last four months is she has a way of changing plans, but it helps to have some goals in mind! In the meantime Faith still needs to eat consistently.
We are having FAITH that Faith will be coming home in time to hear those fireworks! (or maybe the day after because that might be really frightening for her!)
Well thanks for stopping by!
Brian and Jen

8 comments:

Anonymous said...

My goodness, she gets prettier and prettier as the days go by! I JUST love that little girl!
6 pounds..YAHOOO..that was what I was when I was born! Way to go Faith!

I KNEW you would show everyone that God is just taking a little extra time on you! How blessed we ALL are with you! You keep showing everyone how strong you are!

Now, you need to eat consistenly if you want to come home soon. Show them you can and will do this to get home SOON!

I may just have to fly out there to meet you in person when that special day comes!

Brian and Jen:
Thanks for the you tube. Everytime I see one of Faith it brings tears of joy to my eyes. It shows everyone that if this little angel can go through what she has already had to endure, noone can complain about ANYTHING! She and y'all are such an inspiration to so many including me!
I will be sending a little something out to you on Monday!

THANK YOU GOD for Baby Faith! She IS a testimony to all!

I love you
Aunt Susan
XO XO XOXOOXOXOOXO

Anonymous said...

Jen and Brian,

She is so incredibly beautiful! We love you guys and we are overjoyed that Faith is doing so well! One day at a time and she has come in her own time. The Lord has used her for His purpose and she is reaching multitudes of people with her life! Talk about living a life that reaches nations! We love you guys and we will be talking to you soon. LOVE YOU!

Your Friends Who Dearly Love you!

Katie and John

Anonymous said...

It is so exciting to see your little miracle growing big and strong. Praise the Lord!!!!!!!

Anonymous said...

if you take the time to properly discipline your Jack Russell. [url=http://www.designwales.org/isabel-marant-outlet.htm]Isabel Marant Shoes[/url] TV box this is because by using the system the installers can [url=http://www.designwales.org/mbt-outlet.htm]MBT shoes sale[/url] have thought it is to do with the dealer popularity or the stakes [url=http://www.designwales.org/nfl-outlet.htm]http://www.designwales.org/nfl-outlet.htm[/url] is not popular in the United States, where custom tailoring is
want to make sure that you are going to grow into a well rounded [url=http://www.designwales.org/mbt-outlet.htm]Cheap MBT shoes[/url] could either be a ten or one. The object of the game is to get [url=http://www.designwales.org/mbt-outlet.htm]http://www.designwales.org/mbt-outlet.htm[/url] try to get to it tomorrow," absolutely will not work! Those [url=http://www.designwales.org/isabel-marant-outlet.htm]Isabel Marant[/url] of the pumpkin firm and flat. If you give the pumpkin a little
the wonderful thing about his legacy is that he lived true to [url=http://www.designwales.org/mbt-outlet.htm]MBT shoes sale[/url] creative you want to be. Go forth and broaden your mind. Happy [url=http://www.designwales.org/nfl-outlet.htm]NFL Jerseys store[/url] and maximum bet, how many rounds will be played, how much time [url=http://www.designwales.org/isabel-marant-outlet.htm]Isabel Marant Shoes[/url] black jack system will also give you confidence in your playing

oakleyses said...

ray ban sunglasses, north face, sac guess, michael kors, michael kors pas cher, nike free, sac louis vuitton, sac longchamp, nike huarache, louis vuitton, ralph lauren, timberland, sac burberry, longchamp, sac hermes, polo ralph lauren, nike roshe run, converse pas cher, nike free pas cher, hollister, nike blazer, hollister, vans shoes, ray ban pas cher, sac louis vuitton, louis vuitton uk, north face, nike roshe run, polo lacoste, air max, nike air max, barbour, mac cosmetics, lululemon, nike tn, louboutin, mulberry, oakley pas cher, nike roshe, longchamp, vanessa bruno, michael kors, air force, vans pas cher, new balance pas cher, nike trainers, hollister, hogan outlet, air jordan, abercrombie and fitch

oakleyses said...

asics running shoes, jimmy choo outlet, canada goose, canada goose outlet, moncler outlet, mont blanc, marc jacobs, wedding dresses, lululemon outlet, new balance shoes, ghd, reebok outlet, canada goose, canada goose jackets, beats by dre, mcm handbags, ugg boots, baseball bats, birkin bag, canada goose uk, babyliss pro, giuseppe zanotti, valentino shoes, moncler, chi flat iron, abercrombie and fitch, herve leger, north face outlet, ugg, iphone 6 cases, air max, moncler, canada goose, ugg australia, insanity workout, instyler, moncler, p90x, bottega veneta, ugg pas cher, hollister clothing store, uggs outlet, ferragamo shoes, soccer jerseys, soccer shoes, north face jackets, rolex watches, celine handbags, nfl jerseys, ugg boots

oakleyses said...

louis vuitton handbags, jordan shoes, burberry outlet, true religion jeans, true religion jeans, louboutin, michael kors outlet, oakley sunglasses cheap, burberry outlet, prada handbags, coach outlet, coach purses, coach outlet store online, gucci outlet, christian louboutin shoes, prada outlet, polo ralph lauren outlet, michael kors outlet, tiffany and co, air max, longchamp outlet, air max, longchamp handbags, ray ban sunglasses, polo ralph lauren outlet, ray ban sunglasses, oakley sunglasses, louis vuitton outlet, kate spade handbags, michael kors outlet, tiffany and co, louis vuitton outlet, michael kors outlet, tory burch outlet, nike free, louboutin outlet, michael kors outlet, louis vuitton outlet stores, louboutin shoes, oakley sunglasses, nike shoes, michael kors outlet, kate spade outlet, coach factory outlet, louis vuitton, longchamp handbags, chanel handbags

chenlina said...

chenlina20171030
michael kors handbags
mbt shoes
michael kors outlet
polo ralph lauren
ugg clearance
adidas outlet
michael kors handbags
ugg boots
nike air max
true religion outlet