Faith had an eye exam today. Everything pretty much looks the same, which is both good and bad. The good side of it is that the retina has not detached- the bad side is the scar tissue is still pulling. Once again she will have to be closely monitored and we'll have to just wait and see.
Today's other good news is she was weened to 1/2 liter on her high flow which she seems to be handling pretty well. The bad news is her feeding has taken a turn for the worse. She manages to nipple about 1 full feeding every 24 hours. Her docs want to give her time to work on the respiratory before a g-tube is considered, but if she is still not eating by July then it will be time to seriously talk about it. So that's where things stand now. As always Faith struggles with the basics; eat and breathe. We have confidence that she will ween well on the high flow and make it to the low flow- it's the eating that makes us worry. That's why we'd like to come together in full force and pray for Faith united as one. We know this is a lot of ask but...Faith eats every 4 hours at 4, 8 and 12 (in am and pm) if you happen to look at a clock and it is that time please say a prayer for little Faith! She is like the little engine that could when it comes to feeding- it's slow going and she just putters out- if we have a lot of people praying for her at those times, we know she will regain strength! We really appreciate all of your support. If there is one thing this whole ordeal has taught us it's that we are truly blessed to have such caring friends and family. We love you all dearly!
Thanks again for everything!
Brian and Jen