Alright we are beginning to enter the world of health care vs. special needs children. In our care conference last week, Faith's doctors think it is in the best interest for Faith if she has two adults to supervise her at all times, one of those adults preferably being a nurse. Faith needs constant care so a nurse is a must. We just learned that our insurance does not provide home care nursing (gulp!) however, because of Faith's disabilities she qualifies for a Medicaid program that would pay her health costs PLUS home nurse care. The problem is there is a year to 2 year waiting list for this program. Because Faith is still in the hospital her application will be expedited and we will be at the top of the list. If Faith leaves the hospital before all of this takes place, we loose our spot on the waiting list. SO basically we have waited 6 months to take Faith home and now that she is medically stable it this bureaucratic stuff that will keep her there! AHHHHH! The good news is this should be cleared up in the next week or so- the bad news is next Monday is pretty unrealistic. We have waited soooo long a few extra days or another week will not hurt- however school start in a few weeks and Brian and I have to go back to teaching, so another day in the hospital is another day we can't be with Faith at home. So once again we are asking for a miracle! Please pray that all of the paper work goes through and we can get on this list!!!!!
Alright, well thanks so much!!!!!
Brian and Jen
PS: Faith is doing great! One little episode over the weekend but it was not a huge deal- nothing a trach change didn't fix- speaking of which Brian and I have both changed trachs now! It wasn't as scary as we thought it would be!