As you can see, Faith is just not herself. She is pretty puffy, and still having a difficult time breathing. Even on the vent you can see her retracting. There is evidence that there is something growing in the culture- we will have to wait another day or so for it to be identified. She seems to be doing better today than yesterday, but that is not saying a whole lot! We are adjusting to life from the NICU to the PICU. We felt so at home in the NICU, the PICU is pretty intimidating! No word yet on how long we can expect this hospital stay or what the course of action is. RIght now the goal is the make Faith comfortable, keep her on heavy doses of antibiotics, and well, just keep her alive! Yesterday in the ER Faith's doctor who did her tracheostomy came and did another bronch. He found some tracheomalacia which basically means she has a floppy trachea, which could explain her breathing difficulties, even with a trach. Many kids with this type of problem require long term ventilation. The good news is kids can be on ventilators at home. They can also be on CPAP, which is not as damaging as the vent. Well we are praying it won't come to that, but we just want what's best for Faith. Well thanks again everyone!
Brian and Jen