Ok where to start. Well we finally know what is happening with Faith. Basically it is a bunch of things. #1 she has pneumonia. She is also MRSA positive again, which could be linked to the pneumonia #2 there is some other type of staph growing in her cultures that is yet to be identified #3 She has tracheal malacia, which means her trachea is floppy and her lings aren't receiving adequate air. #4 She has bad lungs (also know as chronic lung disease that stims from her being so premature and on a ventilator for a long time.) A team of pulmonologists met with us today and basically said that Faith will need to be on a ventilator for a long time (anywhere from a year to a couple of years). She just can't do it on her own. While she does take breaths on her own, she just works too hard to do it all by herself. She needs help. SO now we have entered a whole new world. The world of 24/7 ventilation is a serious thing. The docs said they will not let us go home until we have a nurse with us 24/7. This is what could take a long time. They basically told us Faith will be in the hospital for the next few months. I know, it's crazy. Sometimes this feels like a bad joke someone is playing on us- can it get any worse? Well...I guess it can because we are very blessed to have Faith. We have seen other parents lose their babies and know that they would give anything to trade places with us. Faith seems to be doing better. She is on heavy doses of antibiotics right now- so heavy she had to have a pic line placed today. Pics lines are tubes that are inserted through a vein and go directly into larger veins in her chest. On top of that she has an IV in her head and foot. She has been poked so many times everyone who tries to start an IV in her has a very hard time because her skin is so tough and her veins just blow. It can take a few hours just to get one in!
Alright well that's where things stand now. Thanks so much for all of your prayers- we REALLY need them!
Brian and Jen