Well it wouldn't be a homecoming without a call to 911 would it? We had another emergency last night. Faith became disconnected from her ventilator in the middle of the night. The nurse freaked out, didn't know what to do and yelled for us. We came down and started bagging her. This time it took a while for her to come back but by the time the paramedics arrived she was better. Oh boy. They wouldn't really have done much anyways because they looked at us and said, "you guys know how to help her more than we do." That's always reassuring- even when you call 911 people don't know how to help your child. Well, the good news is we know how to take care of her and up until last night we felt pretty comfortable. We'll just take this as a learning experience. Alright, well here's to 24 (ok..that may be pushing it lets say 12) drama free hours. We have to make a trip to her ENT today which is always a little nerve wrecking (getting her out of the house is quite an ordeal, and having her off her humidity is always a little scary). So please say a prayer for us this afternoon, and please pray for Faith- boy she is something else her will to live is incredible!
Brian and Jen