Alright....we're back again. We are not there yet. They want us to try to make it through the night then they are going to admit us to Children's in the morning. The reason we are not there now is because we'd just sit in the ER, and they want to wait until the pulmonary team is on. If we have another emergency we will go there right away but for now we are just trying to make it through the night. We have a very good nurse tonight, but we are still not sleeping. We are kind of traumatized by last night. As you all know Faith has been resuscitated MANY times- but we have never seen her as blue as she was last night. It freaked us out so much we want her in the hospital long term. Everyone has agreed that she is just too fragile to be at home. We look at the boy next door to Faith who has been there a year and a half and we want that to be Faith- at least he is alive. If we keep pushing for Faith to be at home who knows what could happen. SO we are going to tucker down and make the hospital our home again. If Faith dramatically improves and ONLY if we have COMPLETELY competent nurses who are very well trained on trachs and vents will we even consider going home again. This is all very devastating but at this point we just want Faith to be alive and if this is what it takes then so be it.'
Alright hank you all for keeping Faith in your prayers,
Brian and Jen
PS: Yes, we canceled our ENT visit today- that would have been too much!
7 comments:
You kids have been through it. I know its hard not to be discouraged but you are probably doing the right thing and doing what is best for Faith!
Of course we all want her home but that time will come when there wont be sleepless nights and stress..I promise.
Faith is a very lucky girl with such devoted parents who love her immensly! Plus she has a pretty cool Aunt and Uncle in Texas who adore her! ;)
You need ANYTHING call ok..I am here anytime day or night..you know that!
Get some sleep if you can and know you are in our thoughts! Enjoy tonight and no worries..she will good tonight! Love on her!
LOVE Y'ALL,
Aunt Susan, Uncle Mike, Steve and MIchelle
Dear Brian and Jen,
Wow, how incredibly scary. Thank God, you were able to wake up and react so fast. I'm so sorry your homecoming scared you to death and didn't turn out the way we all prayed for. Faith just needs more time to be pampered by the medical team at the hospital (let's call it the spa)and you need time to faint. Your Medical Degree Certification will arrive any day now and Dr. & Dr. Reming you must teach the rest of us about stress management because you are EXPERTS! Know that I continually pray for Faith and you.
How darling is she in her Bills and Broncos outfits! What a cutie!!!
Love,
Mary Trujillo
I agree with your friend Mary! The Medical certificate will be hanging on your wall very soon!
And a perfect way to look at it: The medical team will pamper her and give you guys time to rest THEN you guys need to go to a spa for real! ;)
I prayed for FAith and hope the night went well.
We love you and I knwo today will be difficult but I think you are making the right desicion adn KNOW you seeked God on this...Give her more time can only be good for her!
Love ya,
Aunt Susan
XOXOXO
Brian and Jen:
I wanted to share an email I got from very good friends of mine that I used to babysit thier children years ago. There grandson, Kevin, could nto hear when he was born and they found a doc that does cochlear implants. So they make visits often but they saw a little girl and immediately thought of Baby Faith. She says some really important thing and I wanted to share with you. GOD HAS A PLAN! And her second to last sentance MAY say it all!
Love you,
Aunt Susan
***************
hi Suzi,
These people make everyone else's problems seem like nothing. Please do tell them that the last time we took Kevin to the Hearing Institute, there was a little girl there who had obviously been through a lot. She was doing well and responding to her parents and her surroundings. She was probably 2-3. I did not get to talk to the parents, but I immediately thought of Faith. There is going to be a light at the end of the tunnel. Perhaps the other night was God's way of telling Jen and Brian to be even more patient and to allow Faith to remain in the hospital. While it is hard on her parents, I am sure she is an inspiration to all who come in contact with her. She has probably turned more people to God than some ministers!!!
Keep me posted and I will continue to pray for this darling girl.
Love,
Jeanie
Dear Brian & Jen,
I'm so sorry to hear that Faith's second homecoming did not go the way you hoped. At least at the hospital you have a sense of security and I hope a chance for you guys to rest. I am praying for you all daily. You guys never cease to amaze me. Faith is so blessed to have you as parents. God bless you both and Faith. I love you guys.
Love & Blessings,
Mary Freeman
Brian and Jen:
My Bsst friend and account ability partner back in Florida, Barb Pedergraft, sent me this to give to you Love you guys : Aunt Susan:
See below:
Send this to Brian, Jen and Faith, Something tells me it will speak to them at this point. Wow, talk about praising Him in the storm!
Barb P
*****************************
Praise you in this storm Lyrics
Artist(Band):Casting Crowns
I was sure by now, God, that You would have reached down
and wiped our tears away,
stepped in and saved the day.
But once again, I say amen
and it's still raining
as the thunder rolls
I barely hear You whisper through the rain,
"I'm with you"
and as Your mercy falls
I raise my hands and praise
the God who gives and takes away.
Chorus:
And I'll praise you in this storm
and I will lift my hands
for You are who You are
no matter where I am
and every tear I've cried
You hold in your hand
You never left my side
and though my heart is torn
I will praise You in this storm
I remember when I stumbled in the wind
You heard my cry to You
and raised me up again
my strength is almost gone how can I carry on
if I can't find You
and as the thunder rolls
I barely hear You whisper through the rain
"I'm with you"
and as Your mercy falls
I raise my hands and praise
the God who gives and takes away
Chorus
I lift my eyes onto the hills
where does my help come from?
My help comes from the Lord, the maker of heaven and earth
I lift my eyes onto the hills
where does my help come from?
My help comes from the Lord, the maker of heaven and earth
God bless them. I know they want her home & it must be so frustrating to be in the hospital and/or not be able to bring her home w/ them. However, take their time. Be patient. It's been a long 7 months - yes, but in time this year will seem so short with the years ahead of them. She must be healthy and able to be home and ok to be w/ nurses at home. Oh I tell ya Jenn is one special woman. She is truly an amazing mother. I see the "set up" she has created for Faith - the toys and dolls and blankets that sound Faith's bed - top knotch. Just focus on those little positives - Faith tracking light etc.......and "let go & let God". He will know when Faith is READY to come home - until then........know in the hospital she is getting the best best care ever. I know they are ready to "do it on their own" - but God knows best - and maybe he is just giving these parents just a bit more time (kinda a break all parents need - to recoop after all they've been thru) knowing that someday they will be "doing it on their own at home" = hah maybe God just knows they aren't ready yet and thus he keeps Faith in the hospital - who knows. She is a fighter that little girl - bless her for all she's gone thru......
Our prayers continue for them......
Tobie R. Halliburton
(another friend of your Aunt Susan)
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