Is this the "I just did something naughty" look?
Above: Some babies hold toys, others hold rattles, our baby holds her feeding tube (but hey at least she is holding something!) Below: Yes, the IV is back. Faith has been poked so many times the only "good veins" she has left are in her head.
In typical Faith fashion, the minute we start talking about the h-word she has another set back. She is sick again. Her x-rays show some pneumonia (which is a chronic lung disease thing) and her blood work shows that her body is fighting some sort of infection. SO yes, the IV is back, and yes the pic line is coming. Faith has also had something else going on this week. There is a suspicion that she might be having seizures. To rule this out they've done an EEG (which came back ok) and they are going to do an MRI on Monday. Since she has to be "put out' for the MRI they will attempt to place the pic line in at the same time. So yes this means Faith will not be coming home on Monday. The good news is if she is healthy enough she can come home with the pic line since we will always have a nurse with us. Alright, so basically Faith needs to get better!!!! In some happier news, this week a vision therapist from the Anchor Center for Blind Children (never in a million years did we think our child would need those services, but anyway..) to evaluate Faith. They found out what we already know; Faith loooooves to look at light. In fact, when we shined a light on my (Jen) face, Faith reached and touched my mouth! This was the first time she has ever reached for anything before. Everyone in the room teared up! She found her mommy! So now we just shine away by putting light on anything and everythiing and Faith looks at it. :) Once again, it's always the little things....
Thanks for praying for Faith to get well so we can bring her home!
Brian and Jen