We've taken so many pictures lately and have not had the opportunity to share them with you so we decided to make another slide show. We are in the process of making a page of pictures for those of you who cannot access the you tube videos.
Time has sure flown by! We had a nice Christmas- it was a different kind of a day- we were surprised with lots of snow (twice this week) which has made it difficult traveling to the hospital (we live about 30 miles away-in bad weather or traffic it can take over an hour to get there) but nevertheless we made it (our theme song this week was.."Ain't no mountain high enough....") First Christmases are funny. The kids have no idea what's going on- nor do they really care it's the parents who often have high expectations for the day- we are learning that as parents of a special needs child (or any child for that matter) you have to learn to let things go. Like on Halloween when Faith was sick and we forced her into the kangaroo costume...should have let that go....well here's my letting go story for the week. Getting Faith's first picture with Santa was a big deal to me- we get our dogs pictures with Santa so of course we had to have Faith's. Faith did meet cyber Santa but that wasn't good enough for me.... we were told that Santa would visit the kids on Christmas day but he may not be able to go into the rooms whose kids are in isolation. We understood this but still were holding out for the chance that the jolly old man would make an appearance in Faith's room. SO Christmas morning rolls around- Brian is at the hospital early that morning and realizes he doesn't have a camera....well not a big deal we figured Santa would come later... I (Jen) was stuck at the house because my car wouldn't make it out of our culdesac turns out Santa shows up at 8am...but have no fear Brian grabs the video camera...just as Santa comes into the room Faith starts turning blue and has an episode (turns out she had a plug)!!!! Now I know everyone has Santa stories like this...but they don't usually involve a resuscitation bag!!!! We just have to laugh at this one...so Faith did not get to have her picture taken with Santa....we didn't get to get it on video.....but you know what we have more than anyone could ask for, this year we were given the gift of life!!!!
Alright well we have many more stories to share but we are wiped out. We hope all of you had a wonderful Holiday!!!!
Brian and Jen ;)