I heard about this story from a fellow trach mom. Faith uses the exact same ventilator as the girl in the video clip. I thought this might shed a little glimpse of what our daily life is like:
http://www.boston.com/news/local/massachusetts/articles/2008/07/24/when_life_hangs_by_a_tube/?page=1
2 comments:
Hi! I am new to your blog. I've been reading about Faith and her amazing journey. I, too, have a son on a ventilator. His name is Gabe and he is 22 months old. I can very much relate to some of the trials and horrible experiences I've read about you having with Faith's nurses and the equipment companies. One day we should compare stories. Gabe's page is at: http://gabemarini.blogspot.com
It is so nice to have another mom/dad who understand what it is like to care for a child with a ventilator. Outsiders just don't get it! My email address is also themarinis@hotmail.com
Feel free to be in contact. I will keep reading about Faith (Ironically I have a 3 yr. old named Faith!) :)
Blessings,
Rachel
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