Yesterday Brian and I decided to do something out of the ordinary. We haven't "lived it" up in about two years so we decided to take a day and have some fun. We went to Water World (a water park) and had a blast. While we had a lot of fun we couldn't stop thinking of Faith and how we cannot wait to take her to places like that someday (minus the trach of course).
It's just out luck that when we finally do something for ourselves we come back and Faith was a mess. She had a dusky tone, she wasn't smiling, and she was retracting. Her lungs sounded very wheezy, her nostrils were flaring and her heart rate was 180. She is usually on a 1/2 liter of oxygen and her oxygen saturation level is 98...well we put her on a liter of O2 and her sats just stayed above 90. We've grown as parents because we didn't rush to the phone or to the hospital. We knew if we got through the night we could go in the morning (and avoid all of the midnight er hoopla...) We also knew that there wasn't much they'd do there that we couldn't do at home (increase her support, O2, and give her breathing treatments).
Today Faith looked a little better. Since we already have an appointment scheduled for tomorrow the docs wanted us to try to wait until then. She has her smiles back, so we will wait another day.
We want Faith to be around other babies and experience new things but she is showing us that her immune system is compromised and we have to handle her interactions with others with care. This isn't going to stop us from taking her out, but we will be a little bit more cautious. After all it is summer...these are supposed to be her healthy months!
On a happier note here are some pics from our day from you know where... ;)
This is as close to the beach as Faith will ever get (at least for now..) another thing kids with trachs aren't supposed to do is to be around sand (tiny granules and openings in necks that lead to the lungs are not a good match!) (Pics from World of Wonder Children's Museum)
Another thing Faith will not see for a LONG LONG (we're talking decades here...)time is behind the wheel of a car. ;) Lucky for us she wasn't thrilled with the idea either. 'Atta girl Faith!
In the dino cave- Faith is brave!
Ahoy-Matey! Faith sails the high seas (with a little help from daddy).
Home sweet, Grandmas. This was Faith's first time at Grandma Mary's house. My mom of course, was thrilled. :)