Saturday, September 11, 2010

The How



I wanted to post another picture of Faith's wide mouthed smile from the past week and post a "how did we get from here ____ to here-_____." But I did not bring my camera.


It's really not as sudden as it seems.


From the day her ET tube was pulled (4 days post-surgery) Faith struggled to breathe. Initially it was thought to be secretions that she just needed to clear. Brian and I both knew there was more to her breathing issues than that.


Where things were left after the last post was if her breathing worsened or did not get better to call the doc. Well, things did not get better. We spent last Sunday in the ED, but were told there was really nothing they could do. A few days later our ENT put her on a high dose of Decadron (steroids) as a last resort. After three days of steroids Faith showed no improvement.


When I got home from work yesterday Faith was gasping for air. After speaking with our ENT she gave us the go head to drive her to the emergency department. As we strapped Faith into her car seat her breaths became shorter and she started turning blue (hence, the 911 call and ambulance ride).


Once at Children's they bronched her and discovered that her airway looked even worse than the swollen pictures from last week (the one in the middle from my previous post). *insert big sigh here* The ENT could not believe how good Faith looked prior to the bronch because the evidence showed a severely swollen airway and how she was breathing through it was unbelievable.


Prior to the bronch the hope was the docs could dilated (balloon) her airway once again. The consesues was the current state of her airway is beyond ballooning. The word "dynamic" was used to describe her airway- something we have heard before.


So that's where we stand today. Faith is intubated and on a ventilator. She is on numerous meds/sedatives and is strapped to the bed.


Not sure where we go from here. The current plan is to give her a "chill out" period where she does nto have to work to breathe. On Monday our ENT will do another bronch.


The "T" word has been thrown around a lot.


While Faith was in surgery last night I said to Brian, "I don't know what's worse- Faith coming out with a trach or keeping things the way they are and not receiving any answers."


Intubation is neither of those things, but it's definitely not where we expected to be.


At this point I am relieved that Faith is not struggling to breathe. It was a very confusing and uncomfortable week watching her work so hard to breathe.


Thank you for keeping little Faithers in your prayers,
Jen & CO.

15 comments:

Rachel said...

Poor little girl! :( I'm so sorry she's been working so hard to breathe-I know how hard that must be to watch!! I also know how hard the "t" word must be to hear.... We are praying for her airway... and for answers... Hugs from maryland

Karen said...

Thinking of Faith and praying for your family.

Karen, David, Faith, and Natalie

Anonymous said...

Oh Jen, Praying praying and praying. Hang in there hun, I can't imagine what you are all going through right now. Oh I wish I was there to hug you guys right now. Our little faith has a divine plan on this earth and the Lords purpose is great,although in this time the blinders are on and perspective is lost. I am joining with you in love and prayer trusting that the Lords plan is much greater than our own. We love you so much and I know there are no words that can bring comfort at this time. Know we are here, we are here, we are here.

All our Love,

Katie, John and Lj

Anonymous said...

I'm so sorry that you're going through this, but so glad that Faith's in a place where she's getting good care. We're praying for all of you.

Amy Van Vranken

Erin said...

Jen and Brian- I'm so sorry Faith is having such a hard time- you are in our prayers!!

Anonymous said...

insert HUGE sigh.

Amy B.

Hope said...

I'm stunned and so sorry Faith is fighting this. Prayers are yours!

Alicia said...

So sorry, Jen. We have been praying all weekend. Jeremy is torn up about Faith.

Hang in there sweet Faith. Keep fighting and we know you'll bounce back.

Anonymous said...

We will continue to pray for Faith and also for her parents. I know how worried you must be and we will continue to pray that the inflamation in Faith's trachea will go down and she will heal with no further issues. Last weekend Milo told me he wanted to go to the zoo with "Face"

Shirlee Skinner

Ayden said...

(((hugs))) Jen... so sorry Faith has to go through all of this! It shouldn't have to be this hard with all that she has gone through. take care... sending prayers your way!

Susan said...

Hugs. I'm sorry you are in this position. I really hope things turn around.

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