Monday, September 13, 2010

Sleeping Beauty



Remember last go around we were mad that Faith wasn't fully sedated? Well, I take it back. Full sedation is over rated. I do not like looking at my daughter lying lifeless in a hospital bed. She does open her eyes from time to time but is quickly medicated and falls back into her comatose state.



That's how our weekend was spent. This afternoon they will take her back to the operating room for a bronch. We're just glad that there will be movement one way or the other. Trach, or no trach we just want our Faith back.

Jen & CO

************************UPDATE*******************************

The bronch last night went about as well as it could have. The swelling did decrease and they did not feel Faith was at the point where she needed a trach (although the real test will be when she is breathing on her own). The plan is to extubate and put her on bi-pap.Her airway is pretty floppy, thus she needs positive pressure to stent it open. ENT feels we will need to have her on bi-pap at home (hopefully just when she is sleeping). While this is good news we are anxious to see how this pans out once we are home. We don't care about the method in which Faith breathes just as long as she is comfortable.Thanks for all of the prayers!

11 comments:

gem said...

This is really tough. I so sorry things have not gone smoothly. Here's hoping she can turn it all around but as you say at least you will know one way or the other. I am looking forward to seeing her smile so I can only imagine how ye must be feeling. Thinking of you.

Dustin and Tina said...

Just praying and thinking you guys. Please let me know if you need anything at all.
We love you,
The Beauvais

Michelle said...

I have no words, I'm in tears and my heart is breaking for you guys. I will be praying for you all.

Anonymous said...

Praying, and continue to pray. We love you guys and we are so sorry you are going through so much. This has to be so hard. We love you guys.Thinking of you every day.

All our Love,

Katie, John and LJ

Ann said...

Jen and Brian - I'm so sorry for you and for Faith. If there was anyone entitled to a break, it is you guys. It's hard to not wonder about on the "why" of it all, but, I know you will pick yourselves back up and get through this like you always do.

I'll share one of my favorite quotes:

"Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope."

Hang on to hope.

Much love,
Ann

Jen said...

Hope things have turned around for you guys. Hoping Faith is doing much better today.

Anonymous said...

Jen and Brian,
I was just able today to check how Faith was doing. You have all been in my prayers this week and I will continue praying for you as well as I will add Faith to the community prayers that all the sisters offer daily during our holy hour before the Lord.
Love, Beth

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