On Friday, July 6th Faith is scheduled to have a tracheotomy. Yes, we were shocked too. We were not expecting this at all. For the past 48 hours Faith has had several episodes where she has turned apenic and stopped breathing. The nurses, the docs, and everyone agrees that this cannot go on any longer. Faith works sooooo hard to breathe- it is so sad seeing her struggle for air. The trach will give her an airway. She is also going to get the gastronomy tube (g-tube) at the same time since she will be on a ventilator.
Brian and I have gone through many different emotions in the past 24 hours- this is going to be a big adjustment- caring for a child with a trach is not something to take lightly. There is a lot of equipment and there can be complications with the trach. Fortunately we have tremendous support from friends and family that will help us through it (not to mention FANTASTIC nurses and doctors that are walking us through this every step of the way).
We are going to learn everything this is to know about trachs and g-tubes in this next week and a half so that on the day of the surgery we will know we will be prepared to take care of our precious little girl.
Thanks you for your prayers and support- we really need it now!
Brian and Jen
PS: Faith had an eye exam today; same thing as the last post. Right eye: limited vision, but there is hope with correction. Left eye: no vision.