Alright. You all know how it goes. Here we go again. Today we had to call 911 and Faith was rushed to the Children's hospital. We were there earlier today-but not in the er. Faith's ganuloma around her g-tube was getting really big so our docs at St. Joe's set up an appointment for us to go today and get things checked out. We were nervous about Faith being off of her heated mist because she could dry out. Everything went well at the appointment and we went back to our house. Shortly after two respiratory therapist from our medical supply company came to check on us. Well, right about then Faith starts turning blue- we turned her up to 6 liters of oxygen (for those of you who know oxygen that is a lot!) and her sats continued to drop. So we did a trach change, which usually solves the problem. This time the trach change did not help and Faith continued to drop. So we called 911 and Faith was rushed via ambulance to Childrens. Once she got to Childrens she was sating better and requiring less oxygen. What they think happened was a plug. But this time it was a deep plug- deeper than the trach and deeper then we can suction. The scary thing is they told us this would probably happen again. YIKES! They told us we did the right thing, which was reassuring, but we are still pretty frightened! Although we have seen the light out of the NICU tunnel it seems like we heading through another mountain. We will keep you posted- please pray that these plugging episodes will go away! Faith averages about one every week- which was bearable when we had a safety net in the NICU but not at home!!!
Well thanks for all of your encouragement- your comments have meant so much to us!
Brian and Jen