Faith just keeps truckin' along. She is more smiley than ever- loves to laugh (although you can't hear her we know it's laughter) and is just blossoming. She had a bug last week but has seemed to be back to her old self. He glasses have been ordered and are on it's way. That should be fun (can you sense the sarcasm). When we were trying to fit Faith for frames it was like WWII- that girl can fight! It will be an adjustment for her. In the meantime we've been putting headbands on her to get her used to having some compression around her head- even this has been a battle.
Faith had another bronch last week which still showed lots of swelling- so much that the ENT's said if the trach ever came out and it couldn't go back in they don't even think they could put an ET tube (a breathing tube) down her airway. This kinda helped us gauge how long Faith is going to need her trach (quite a while) however just the trach seems like nothing anymore- our goal in the next year is to nix the vent. So that's about it!!!!
Thanks for making our girl a part of your day!
Brian and Jen
Oh yeah this weekend I was in a store and stopped at an aisle I usually pass- the car seat aisle (Faith has outgrown her infant car seat that she got to use 2 times...) I briefly checked out the styles and prices...a step in the right direction even if it's a baby step.....